Real stories from people with Fabry disease
Hear from members of the Galafold community about their journeys to a Fabry disease diagnosis, and about finding different ways to fit Galafold into their individual lifestyles.
Individual voices
Elise and Rebecca: Fabry in the Family
Opening up about shared experiences and challenges living with Fabry.
Elise: Strength Within
Growing through shared experiences with family and finding new strength in motherhood.
Rebecca: The Self-Advocate
Taking charge of her Fabry by speaking up for herself.
Veronica: The Busy Parent
Taking the time to find the treatment and the care team that best complement her.
Alex: One of the First Galafold Patients
Getting a second degree and caring for his family, all while taking part in the first clinical trial for the only pill for Fabry.
Joyce: The Fabry Matriarch
Letting the memories of her family help guide her through life as a grandmother today.
Community discussions
Women With Fabry: Breaking Stereotypes & Being Heard
A discussion on navigating life as women with Fabry disease.
Women With Fabry: Breaking Stereotypes & Being Heard
A discussion on navigating life as women with Fabry disease.