Galafold® (migalastat) Videos & Resources
> Resources
A spectrum of Fabry
disease support

Rebecca,
living with Fabry

A spectrum of Fabry
disease support

Materials made for printing and sharing

Galafold-specific materials

Galafold Patient Brochure

Galafold Patient Brochure

Get to know the first and only oral therapy for Fabry disease in adults with an amenable GLA variant.

Galafold How-to-Take Brochure

Galafold How-to-Take Brochure

A step-by-step guide to taking Galafold capsules.

Fabry Self-Advocacy Guide

Fabry Self-Advocacy Guide

Learn how you can take charge of your own Fabry care.

Fabry Variability Brochure

Fabry Variability Brochure

See how your genetics is connected to how you experience Fabry disease.

Women & Fabry Brochure

Women & Fabry Brochure

See why self-advocacy is important for women with Fabry.

General Fabry materials

Fabry Effects Checklist

Fabry Effects Checklist

A tool to help you prepare for your next doctor appointment.

My Fabry Tracker | Resource

My Fabry Tracker

A personal guide for tracking and monitoring your Fabry.

Health Insurance 101 Brochure

Health Insurance 101 Brochure

An overview of health insurance coverage plans.

Mental Wellness Brochure

Mental Wellness Brochure

A helpful guide for monitoring mental wellness while living with a rare disease.

Helpful links

Patient advocacy organizations

Fabry Support & Information Group (FSIG)

FSIG raises awareness of Fabry disease while advocating and fighting for effective treatments to improve the lives of patients and their families.

Visit FSIG

National Organization for Rare Disorders (NORD)

NORD advances practical, meaningful, and enduring change so people with rare diseases can live their fullest and best lives.

Visit NORD

National Fabry Disease Foundation (NFDF)

The NFDF focuses on improving education, supporting research, promoting advocacy for disease-related issues, and providing assistance to patients and families.

Visit NFDF

Global Genes: Allies in Rare Disease

Global Genes is a nonprofit providing support to those impacted by rare disease, focusing on advocacy, organization building, awareness, and research enablement.

Visit Global Genes

Fabry International Network (FIN)

FIN is an independent network of 61 Fabry patient associations across 57 countries that collaborate on and promote best practice to support those living with Fabry disease all over the world.

Visit FIN

Rare Disease Legislative Advocates (RDLA)

RDLA is a program of the EveryLife Foundation for Rare Diseases that empowers the rare disease community to advocate for policy and legislation that advance the development of and access to life-changing health care.

Visit RDLA

Mental well-being resources

Rareminds

Rareminds provides counseling services, mental well-being materials, caregiver support, education, training, and more for those living with rare disease.

Visit Rareminds

Give an Hour

Give an Hour offers personalized and interactive mental health products, services, and materials that are informed by both evidence and lived experiences.

Visit Give an Hour

Educational tools

FabryConnect

An Amicus-sponsored site to connect you with a wide array of Fabry disease resources tailored to your needs.

FabryConnect

ThinkGenetic

Connect with a genetic expert and take a quiz that can match your symptoms with genetic diseases.

ThinkGenetic

IMPORTANT SAFETY INFORMATION AND INDICATION

Before taking Galafold® (migalastat), tell your healthcare provider about all of your medical conditions, including if you:

  • have kidney problems.
  • are pregnant or plan to become pregnant. It is not known if Galafold will harm your unborn baby.
  • have kidney problems.
  • are pregnant or plan to become pregnant. It is not known if Galafold will harm your unborn baby.
  • are breastfeeding or plan to breastfeed. Galafold may pass into breast milk. Talk to your healthcare provider
    about the best way to feed your baby if you take Galafold.

Tell your healthcare provider about all the medicines you take, including prescription and over-the-counter medicines, vitamins, and herbal supplements. Especially tell your healthcare provider if you take medicines or supplements containing caffeine as these medicines or supplements may affect how Galafold works.

How should I take Galafold?

Do not eat food, or take or drink any product that contains caffeine at least 2 hours before and 2 hours after taking Galafold to give a minimum 4 hour fast.

What are the possible side effects of Galafold?

The most common side effects of Galafold include headache, stuffy or runny nose and sore throat, urinary tract infection, nausea, and fever.

These are not all the possible side effects of Galafold. Call your healthcare provider for medical advice about side effects.

What is Galafold?

Galafold is a prescription medicine used to treat adults with Fabry disease who have a certain genetic change (variant) in the galactosidase alpha gene (GLA) that is responsive (amenable) to Galafold.

It is not known if Galafold is safe and effective in children.

You may report side effects to FDA at 1-800-FDA-1088. You may also report side effects to Amicus Therapeutics at 1-877-4AMICUS.

Please click here for Full Prescribing Information, including Patient Information and Instructions for Use.

Down arrow