A spectrum of Fabry disease support
Materials made for printing and sharing
Galafold-specific materials
Galafold Patient Brochure
Get to know the first and only oral therapy for Fabry disease in adults with an amenable GLA variant.
Fabry Variability Brochure
See how your genetics is connected to how you experience Fabry disease.
General Fabry materials
Fabry Effects Checklist
A tool to help you prepare for your next doctor appointment.
Mental Wellness Brochure
A helpful guide for monitoring mental wellness while living with a rare disease.
Helpful links
Patient advocacy organizations
Fabry Support & Information Group (FSIG)
FSIG raises awareness of Fabry disease while advocating and fighting for effective treatments to improve the lives of patients and their families.
National Organization for Rare Disorders (NORD)
NORD advances practical, meaningful, and enduring change so people with rare diseases can live their fullest and best lives.
National Fabry Disease Foundation (NFDF)
The NFDF focuses on improving education, supporting research, promoting advocacy for disease-related issues, and providing assistance to patients and families.
Global Genes: Allies in Rare Disease
Global Genes is a nonprofit providing support to those impacted by rare disease, focusing on advocacy, organization building, awareness, and research enablement.
Fabry International Network (FIN)
FIN is an independent network of 61 Fabry patient associations across 57 countries that collaborate on and promote best practice to support those living with Fabry disease all over the world.
Rare Disease Legislative Advocates (RDLA)
RDLA is a program of the EveryLife Foundation for Rare Diseases that empowers the rare disease community to advocate for policy and legislation that advance the development of and access to life-changing health care.
Mental well-being resources
Rareminds
Rareminds provides counseling services, mental well-being materials, caregiver support, education, training, and more for those living with rare disease.
Give an Hour
Give an Hour offers personalized and interactive mental health products, services, and materials that are informed by both evidence and lived experiences.
Educational tools
FabryConnect
An Amicus-sponsored site to connect you with a wide array of Fabry disease resources tailored to your needs.
ThinkGenetic
Connect with a genetic expert and take a quiz that can match your symptoms with genetic diseases.